SCCOHT Patient Registry

Small Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that affects mainly young women. Due to its rarity, collaboration is a must in order to combat this disease.

The goal of the SCCOHT Registry is to collect information about patients diagnosed with Small Cell Carcinoma of the Ovary, Hypercalcemic Type or a SMARCA4 variant. This registry will provide the medical community with an opportunity to gain insight into SCCOHT and allow for advances within the field. In addition, it will help connect affected individuals who are interested in learning more about potential research opportunities with those researchers.

This registry is available to:
• Any person with a diagnosis of SCCOHT (past or present).
• Any person with a germline SMARCA4 variant (pathogenic/likely pathogenic/variant of uncertain significance).
• Relatives of persons with either a diagnosis of SCCOHT or a SMARCA4 variant.

If you or someone you know would like to participate, please send an email to: sccoht@rimuhc.ca

For more information and resources feel free to visit the registry website: sccoht-smarca4.ca