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Helpful Links

Below you will find connections to an online support community, physicians, current research and compassionate allowance information.

We have a private support group on Facebook for current patients, survivors and families which is specific to small cell ovarian cancer. Log in to Facebook and type “The Small Cell Ovarian Cancer Support Community” in the search box at the top of your page to join. Please answer the two questions in order to be admitted to the group.

Oriana Sousa: Shaping Change and Thriving Through Vulnerability. Read Story

European Network of Youth Cancer Survivors meet in Vienna to discuss insufficient support after cancer treatment. Read Press Release

Dr. Joseph Pressey of Cincinnati Childen's Hospital Medical Center is available to field questions about SCCO for patients up to their early 40's. Contact him at Joseph.Pressey@cchmc.org

Research at McGill University:
For more information on current research into SCCOHT and the causative gene, SMARCA4, please contact Dr. William Foulkes at william.foulkes@mcgill.ca or via these websites: williamfoulkeslab.com and sccoht-smarca4.ca.

Dr. Douglas Levine of Memorial Sloan Kettering and Dr. William Foulkes of McGill University conducted a webinar on October 30, 2015.

How the immune system sees and destroys tumors
This webinar gives a very thorough explanation about our immune system and all the mechanisms involved in recognizing and fighting cancer. We have heard of several SCCO patients showing promising results with Nivolumab and Pembrolizumab which are specifically mentioned about 30 minutes into this VIDEO.

Possible Questions For Your Oncologist
When visiting with your Oncologist for the first time it can be difficult to know all the right questions to ask. We’ve compiled a list of possible questions that may be helpful to you. Click Here to see the full list.

Small Cell Ovarian Cancer is considered a "Compassionate Allowance" disorder that may automatically qualify for fast-track disability benefits in the USA. For more information Click Here .