7.25.24
The NRTO is an international community focused on rare ovarian cancer.
The Small Cell Ovarian Cancer Foundation was formed in 2010 following the devastating loss of our daughter and sister, Stephanie, with the goal of helping future patients and their families by sharing information and funding research.
Small Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that affects mainly young women. The median age of diagnosis is 24 years old, although the age can range from infancy into the 40s. Young adult oncology patients are recognized to be at particular risk and require specialized resources to address their unique medical and supportive needs. Approximately two thirds of patients with SCCOHT have hypercalcemia. SCCOHT is one of several types of ovarian cancer, all with the same general symptoms (See Symptoms Page). SCCOHT is very aggressive. It grows, and even spreads, very quickly. Therefore, we believe the importance of finding and treating this cancer early while the tumor is relatively small and localized is critical. Keep in mind; many doctors have never seen a patient with small cell ovarian cancer. Some doctors who see a young woman with subtle symptoms and no family history of cancer may suggest that she perhaps has indigestion, or some other minor ailment. You must be your own strong advocate. If the symptoms are sudden and constant for 2-3 weeks, please be persistent. YOU KNOW YOUR BODY BETTER THAN ANYONE. Once the diagnosis of SCCOHT is made, seek expert care directed by a center with experience in treating SCCOHT and other rare tumors.
We are devoted to keeping you up to date on the latest happenings with the fight for a cure. Please note that some of the articles and links below will open up in a new browser window or tab and take you to a page outside of SCOCF website. Thanks!