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Welcome to the Small Cell Ovarian Cancer Foundation

Our new site has been re-designed and re-organized! We hope that you find it informative and easy to navigate.

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Raise awareness with our Small Cell Ovarian Cancer

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Learn more about Small Cell Ovarian Cancer Foundation.

The Small Cell Ovarian Cancer Foundation was formed in 2010 following the devastating loss of our daughter and sister, Stephanie, with the goal of helping future patients and their families by sharing information and funding research.

About Small Cell Ovarian Cancer

There are two types of Small Cell Ovarian Cancer – Hypercalcemic Type and Pulmonary Type.
This website’s main focus is Hypercalcemic Type (SCCOHT)

Small Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that affects mainly young women. The median age of diagnosis is 24 years old, although the age can range from infancy into the 40s. Young adult oncology patients are recognized to be at particular risk and require specialized resources to address their unique medical and supportive needs. Approximately two thirds of patients with SCCOHT have hypercalcemia. SCCOHT is one of several types of ovarian cancer, all with the same general symptoms (See Symptoms Page). SCCOHT is very aggressive. It grows, and even spreads, very quickly. Therefore, we believe the importance of finding and treating this cancer early while the tumor is relatively small and localized is critical. Keep in mind; many doctors have never seen a patient with small cell ovarian cancer. Some doctors who see a young woman with subtle symptoms and no family history of cancer may suggest that she perhaps has indigestion, or some other minor ailment. You must be your own strong advocate. If the symptoms are sudden and constant for 2-3 weeks, please be persistent. YOU KNOW YOUR BODY BETTER THAN ANYONE. Once the diagnosis of SCCOHT is made, seek expert care directed by a center with experience in treating SCCOHT and other rare tumors.

Our mission is to raise awareness of the symptoms of ovarian cancer, make information about small cell ovarian cancer more readily available to future patients and their families, and to fund research into this dreadful disease.

Check out the lastest news.

Stay informed regarding the very latest news & research for SCCOHT.

We are devoted to keeping you up to date on the latest happenings with the fight for a cure. Please note that some of the articles and links below will open up in a new browser window or tab and take you to a page outside of SCOCF website. Thanks!

Watch the SCCOHT/SMARCA4 online Patient & Family information session.